The online resources include organizations with a variety of
interests and perspectives. The Human Genome Project site has
good basic information about genetic engineering that can be
understood by non-experts. The Council for Responsible Genetics
considers the impacts of biotechnology from a public interest
perspective, including the effects of germline engineering, while
the Biotechnology Industry Organization (BIO) officially represents
the biotech industry and its constituent companies.
The Human Genome Project has a gene therapy page where the
interested non-scientist can learn about gene therapy. The site
contains a section on ethics and is available at: http://www.ornl.gov/sci/techresources/Human_Genome/medicine/genetherapy.shtml.
The Center for Genetics and Society has a website with a section
on policies, perspectives, news articles, and information on
germline intervention technologies. The site is available at:
http://www.genetics-and-society.org/index.asp.
The American Journal of Bioethics website provides journal
articles and resources on bioethics, including germline intervention.
It includes weekly news updates, editorials, and featured target
articles. This site is available at: http://bioethics.net.
The Council for Responsible Genetics is a non-profit organization
dedicated to distributing accurate information about biotechnology.
The website includes the online magazine “Genewatch,” which is
dedicated to monitoring the social, ethical and environmental
consequences of biotechnology, as well as an entire section focusing
on human genetic manipulation and cloning. This site is available
at: http://www.gene-watch.org/programs/cloning.html.
The International Centre for Genetic Engineering and Biotechnology
is an organization dedicated to research and training in molecular
biology and biotechnology. The ICGEB promotes “safe use of biotechnology” and
is a major resource for technical information, including research
and training sources. This site is available at: http://www.icgeb.trieste.it.
The Biotechnology Industry Organization (BIO) represents biotechnology
companies, academic institutions, state biotechnology centers
and related organizations in the United States and numerous other
countries. BIO has developed an "Oversight of Gene Therapy:
A Position Paper of the Biotechnology Industry Organization," which
is available at: http://www.bio.org/issues/genetherapy_120799.html.
Gene Watch is a nonprofit group in the United Kingdom that
monitors genetic technology, with special focus on the public
interest aspects. The site is available at: http://www.genewatch.org.
The Cold Spring Harbor Laboratory (www.cshl.org) conducts
research in cancer, genomics, plant genetics, and neurobiology.
The website includes the Dolan DNA Learning Center site, which
is a resource for educational information about DNA and is available
at: http://www.dnalc.org.
Ifgene was formed to promote a deeper dialogue about genetic
engineering by giving special attention to how people approach
science and the moral and spiritual implications of genetic engineering.
The website includes articles, book reviews, and useful links
and is available at: http://www.anth.org/ifgene.
The website for Global Lawyers and Physicians for Human Rights
provides information on national and international legislation
regarding human cloning and germline intervention. This site
has a clickable “genetics database map” which allows the user
to click on regions of the world and get information about policies
and resources in that area relating to cloning and germline intervention.
The site is available at: http://www.glphr.org/genetic/genetic.htm.
The Disabled Peoples International (DPI) Position Statement
on Bioethics and Human Rights offers statements on the potential
implications of genetic interventions to the disabled community.
The Position Statement is available at: http://www.dpieurope.org/htm/bioethics/dpsngfullreport.htm.
Human Genetics Alert, a public interest group based in London,
has a number of position papers, press releases, and cartoons
dedicated to the implications of biotechnology, including germline
intervention. The website is available at: http://www.hgalert.org.
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