International Bioethics Committee of UNESCO
www.unesco.org/ibc
The International Bioethics Committee of UNESCO fosters an international discussion on the social, cultural, legal, and ethical implications of scientific progress. The website, which includes declarations and other resources, is available at: http://portal.unesco.org/shs/en/ev.php-URL_ID=1372&URL;_DO=DO_TOPIC&URL;_SECTION=201.html.
National: Policy and Ethics
http://www.genome.gov/PolicyEthics
The National Human Genome Research Institute, a division of the National Institutes of Health, maintains a website devoted to ethical, legal, and social issues related to genetic research and technologies. The site, which can be found here contains a policy and legislation database as well as links to publications, resources, and other websites.
HumGen
www.humgen.umontreal.ca/en/
Humgen is a searchable human genetics policy database containing legislation, publications, and reports concerning genetic testing, cloning, gene therapy, intellectual property, and other related topics. The website, which includes a newsletter, can be found here.
Synthetic Biology is a group of individuals comprised mostly of students and scientists dedicated to promoting the field of synthetic biology and ensuring that is conducted in a responsible manner in the best interests of science and society. The term "synthetic biology" entails designing or building biological parts and systems, and reverse engineering simple, natural biological systems already existing in nature. A website including documents, projects, conference reports, and a discussion forum can be found at:
http://syntheticbiology.org/
The website for an EU-funded project, entitled "The Coordination Action Chimbrids," analyzes fundamental issues in genetic research relating to chimeras and hybrids - creatures consisting of both human and animal genetic material. The objective of the project is to develop an understanding of the legal, social, and ethical implications of chimera and hybrid research within an international framework. The website is available at: http://www.chimbrids.org/.
The Human Genome Project has a gene therapy page
where the interested non-scientist can learn about gene therapy.
The site contains a section on ethics and is available at:
http://www.ornl.gov/sci/techresources/Human_Genome/ medicine/genetherapy.shtml.
The Center for Genetics and Society has a website
with a section on policies, perspectives, news articles, and information
on germline intervention technologies. The site is available at:
http://www.genetics-and-society.org/index.asp.
The American Journal of Bioethics website provides
journal articles and resources on bioethics, including germline
intervention. It includes weekly news updates, editorials, and
featured target articles. This site is available at:
http://bioethics.net.
The Council for Responsible Genetics is a non-profit
organization dedicated to distributing accurate information about
biotechnology. The website includes the online magazine ÀGenewatch,”
which is dedicated to monitoring the social, ethical and environmental
consequences of biotechnology, as well as an entire section focusing
on human genetic manipulation and cloning. This site is available
at:
http://www.gene-watch.org/programs/cloning.html.
The International Centre for Genetic Engineering
and Biotechnology is an organization dedicated to research and
training in molecular biology and biotechnology. The ICGEB promotes
Àsafe use of biotechnology” and is a major resource for technical
information, including research and training sources. This site
is available at:
http://www.icgeb.trieste.it.
The Biotechnology Industry Organization (BIO) represents
biotechnology companies, academic institutions, state biotechnology
centers and related organizations in the United States and numerous
other countries. BIO has developed an "Oversight of Gene
Therapy: A Position Paper of the Biotechnology Industry Organization,"
which is available at:
http://www.bio.org/issues/genetherapy_120799.html.
Gene Watch is a nonprofit group in the United Kingdom
that monitors genetic technology, with special focus on the public
interest aspects. The site is available at:
http://www.genewatch.org.
The Cold Spring Harbor Laboratory (www.cshl.org)
conducts research in cancer, genomics, plant genetics, and neurobiology.
The website includes the Dolan DNA Learning Center site, which
is a resource for educational information about DNA and is available
at:
http://www.dnalc.org.
Ifgene was formed to promote a deeper dialogue
about genetic engineering by giving special attention to how people
approach science and the moral and spiritual implications of genetic
engineering. The website includes articles, book reviews, and
useful links and is available at:
http://www.anth.org/ifgene.
The website for Global Lawyers and Physicians for
Human Rights provides information on national and international
legislation regarding human cloning and germline intervention.
This site has a clickable Àgenetics database map” which allows
the user to click on regions of the world and get information
about policies and resources in that area relating to cloning
and germline intervention. The site is available at:
http://www.glphr.org/genetic/genetic.htm.
The Disabled Peoples International (DPI) Position
Statement on Bioethics and Human Rights offers statements on the
potential implications of genetic interventions to the disabled
community. The Position Statement is available at:
http://www.dpieurope.org/htm/bioethics/dpsngfullreport.htm.
Human Genetics Alert, a public interest group based
in London, has a number of position papers, press releases, and
cartoons dedicated to the implications of biotechnology, including
germline intervention. The website is available at:
http://www.hgalert.org.